I headed to Long Island yesterday to spend the day with an old friend. I’d thought I would drive the 60 miles, then I pictured the Long Island Expressway on a Friday afternoon and thought better of it. I could take a train … Continue reading
My husband is a cheater. I really think he has been hiding this from me for at least a week. I noticed the little smirk on his face every time I mentioned it, but he kept telling me that I was crazy and just needed to work a little harder.
Then this morning, while he was in the shower, I checked his cell phone. I found the app and I hit “sync”. I had my proof and I stormed into the bathroom, “What did you DO last night Dan?”
He peeked out from the glass shower door with a funny expression, “Jess, I was home before 11:00. You were sound asleep.”
“If you were asleep before mid-night how did you already get 1550 steps today!”
Generally, I am not very competitive. I’ve had my Fitbit for two years and I’m usually more than content reaching my 10,000 steps a day (about 5 miles). It means I’ve walked the dogs enough to keep them healthy and moved my body enough to fit in my mom jeans. Occasionally, I do except a “challenge” (where you compete with other Fitbiters), but only with people who are 10,000 steps a day folks – I don’t really want a “challenge”, just enough motivation to walk extra mile or two.
Last week I found Anna’s rarely used Fitbit and told Dan he should give it a shot. He gets frustrated by his lack of time to exercise during the week. I thought tracking his steps might be interesting to see how much he’s really moving during the day. I also wanted him to see what an active wife he has — no bonbons and relaxing for me;-)
I downloaded the phone app, set up the Fitbit and showed Dan how to use it. “And, I set us up for a challenge. Won’t it be fun?!”
Last week he beat me by five miles. It nearly killed me, but I rationalized that his commute was good for a couple of miles a day and he had a ton of meetings last week. The weather had cooperated enough for him to walk from meeting to meeting. THAT would never happen again.
This week I set up my schedule so that I could walk two times a day. I added some other “friends” to the challenge and was ready to show everyone that Jesse is the Walking Queen. No luck. No matter how many steps I took, Dan was ahead of me. I asked him repeatably if he’d check to see if his Fitbit was working and he made me feel like I was being silly.
This morning after our confrontation in the bathroom, Dan started getting dressed. He was teasing me about being paranoid, and I was starting to feel rather foolish. Then I looked down at his phone and realized that he had just earned 79 steps by putting on his tie.
I don’t just want to be Jack and Anna’s mom, Dan’s wife, an art teacher, a writer, a pharmacist, a driver, a model (don’t laugh — long story) — I WANT TO BE THE WALKING QUEEN (at least at 26 Clinton Ave. – my other “friends” are beating me too)!! I made Dan switch arms to see if we can get on an even playing field. We are going away this weekend and I’m going to keep a keen eye on my man. No funny business Dan!
Watching them walk the Greenway I can’t help but think back over the countless steps that my boys have made on this very trail. Hiking has always been something they’ve done together. Until this year, Jack could go for hours and keep up with anyone. Now his pace is slow and difficult for whoever is helping him.
Hop, hop, step, hop, step, hop, hop, hop, step. Jack spends more time bouncing than moving forward. Sometimes it takes him a few minutes to move just a dozen yards. And, it’s not just on the trails. Getting him to the car can be difficult and taking him down the isles of a grocery store is becoming a marathon.
It’s been a few months since Jack introduced this new gait. At first we thought it was an extension of the Flamingo Dance and almost applauded it, but we quickly grew frustrated. It makes the simplest activities arduous and can quickly take the fun out of adventures. His therapists and teachers noticed it too and everyone has tried everything to get Jack’s steps to find their old rhythm. Weights on his ankles, weights on his hands, braces – nothing seems to be working.
Dan and I are trying to stay confident that there will be a simple resolve and we can go back to our old hiking days, but we’re starting to get concerned. Generally, Jack is doing quite well. Improvements have outweighed setbacks for years. We weren’t prepared for this. It’s frustrating and unsettling that we have a new issue that we can’t seem to easily fix. Like all of Jack’s complications, this new challenge is not easy or typical. ALD can cause brains to short circuit. Behaviors can quickly become habits that are difficult to reverse. We have a great team working on it, but I’m feeling like we’re bracing ourselves for the fact that this might be part of our “normal”. We really wanted to stop adding to our catalog of not so normal normals.
Added on top of frustration and worry, I find myself feeling guilty complaining about walking issues. At Jack’s school, wheelchairs are as common as backpacks. Jack’s mobility is something revered – even at it’s new, slow pace. It seems petty to whine about something that others covet. Frustration, worry, guilt – not a great blend of emotions for a summer day on Block Island.
Luckily Jack’s smile slaps me back to the reality and I remember that we have a lot to be thankful for. Besides occasional reminders that ALD still lingers, our month away has been wonderful. Time with friends and family, hours a day in the sand and surf, festive meals and beautiful sunsets. That walk/hop/bounce on the Greenway took 46 minutes and we only managed a half mile. We are off to the beach this afternoon. Who needs hiking?!?