HaPpY 14th Transplant Birthday!

14 Years . . . Day + 5113 . . .

It’s Jack’s 14th Transplant BiRtHdAy!!!! 14 years since he received the magic cells from the Little Lady from Detroit that would stop the progression of ALD and allow us to not just continue enjoying life with Jack, but appreciate his wisdom and strength. He’s the greatest teacher I’ve ever had and I know he’s the same impact on everyone lucky enough to cross his path.

Here are some sweet words from his family about our boy. PLEASE add a comment about what Jack means to you.

He’s got moves like Jagger. – Dan

He’s a loud, silent human. I love my Booger – Anna

In an age where we’re all on our devices, Jack is living in the moment and loving it. – Aunt April

Yesterday is history, tomorrow is a mystery, and the present is the gift Jack gives us. – Love Aunt Darcy (with help for Eleanor Roosevelt)

We all so remember this day 14 years ago when Jack stayed so calm and so brave as the the Little Last from Detroit came into him and started to do her magic. He smiled back at all the people standing and applauding in his room. What wonderful advantage we all have been able to take from that gift. Jack has been our leader and hero every moment of the way. —  Nonno and Mymom

A quiet guy with a big personality. – Uncle Phil

We both always feel so good around Jack and feel his presence and happy demeanor. He is a gift that makes us all better people. — Love, PopPop and Nanna Sue

A man of few words who says a lot especially with his laughs and smiles. – Aunt Kate

Jack is just a light soul and a whole lot of laughter and smiles. He is also a great dance partner. – Other Mother Orla

Jack is engaged. People think not speaking would isolate him, but it sure doesn’t. – Mymom

Absolutely famntastic! The best friend anyone could ask for. Empathetic, funny, charming. – Other Father Peter

As my grandson and my inspiration as a valiant and brave guy always ready to replace difficulties and tragedy with a laugh. – Nonno

Jack is the best human being ever, my inspiration in life! – Other Mother Lilly

Jack is pure love! The most beautiful soul I have ever met. He means kindness, friendship, strength and sensitivity with a resilient heart. Jack is an example of how to live life with grace and joy no matter the adversities. – Other Mother Monica

Jack is an amazing young man who loves a good laugh more than anyone I know! – Uncle Matt

Once upon a time there was “a Iittle girl from Detroit” who would forever change a little boy by the name of Jack Torrey’s life!  Her gift to Jack has inspired so many and has given Jack the opportunity to be the awesome dude he is – a smile like no other and an awesome sense of humor to boot! – Love Aunt Kim

Jack’s journey shows that happiness and love can win. Jack still has the same attachment he always did. — Uncle Pablo

Our family can’t describe in words what Jacko means to us. He has completed our family. We love him so much. — Other Mother Maria and Family

Time is always a odd when it comes to remembering defining milestones. We will never forget that day in room 505, but it feels like both yesterday and a million years ago. We remember every detail of the anxiety and energy and hope and smell (stem cells smell terrible — who knew?) in the room when the life-saving cells went into Jacks’s body. It’s the day that we saved our son’s life with the help of countless doctors and nurses AND a family that donated precious cells, never knowing that they were going to give the gift of Jack to so many.

Thank you to the mother of the Little Lady from Detroit! Your gift didn’t just save Jack’s life, it changed the lives of many!!

Love, Jess

saying goodbye is hard

Our family has been showered with so much love following us saying goodbye to Keegan. Thank you. Many have asked how Jack is doing and my answer has been, “As well as anybody would be saying goodbye to a dear friend.”

Saying goodbye is hard.

The morning Dan and I agreed that it was time to call our veterinarian, we shared the decision with both of the kids. We explained that Keegan was in pain, he wasn’t eating and was having trouble walking. We needed to let him go. We talked about him always being in our hearts and that he was going to move on and get to be free of his body that was failing. Anna who had been visiting with my folks said she would come right home, and Jack didn’t react for a moment and then made a pained face and cried. Silent but very real heartbreaking tears.

We spent the day lingering in the living-room where Keegan rested on the floor. We gave him love and cried and laughed and watched bad tv. Jack got to spend a few hours with one of his other mothers, Monica, and got home just as the veterinarian arrived to peacefully send Keegan off to his next journey. It was horrible and beautiful.

We’ve spent the last week sharing a lot of stories about Keegan and picturing him up in heaven playing with many of his old friends. Through our tears we’ve laughed about him needing to be careful that Finn doesn’t stop him from having some fun – Finn never liked Keegan getting to play. Be strong Keegan – it’s your turn to be in charge!!

The house feels a little empty, but Tupelo is doing her best to give us the licks we all need right now. And Jack is doing as fine as any of us are right now. We are all going about our days and periodically getting a firm reminder of what is missing.

Saying goodbye is hard.

People often confuse silence and disability with ignorance, even stupidity – Jack is neither of those things. But, times like this, I wonder if a little ignorance (even stupidity) might not be such a bad thing.

Love, Jess

RIP Keegan

Keegan on Block Island last weekend

We said goodbye to Keegan yesterday. I owe him some beautiful words, but I can’t find them and it’s hard to write through my tears. All I can say is that we will miss him with every inch of our hearts.

Rest In Peace beautiful soul. I know you are running around right now and enjoying endless bacon and belly rubs. Don’t let Finn steal your fun.

Love, Jess

a long goodbye

I wake up in the middle of the night and listen. His labored breaths are troubling but it’s the silence that gets me out of bed. I go over to him, kneel down and put my hand on his belly. … Continue reading